Trust, vulnerable populations, and genetic data sharing

Trust, vulnerable populations, and genetic data sharing

Recent policies and proposed regulations, including the Notice of Proposed Rulemaking for the Common Rule and the 2014 NIH Genetic Data Sharing Policy, seek to improve research subject protections. Protections for subjects whose genetic data is shared are critical to reduce risks such as loss of confidentiality, stigma, and discrimination. In the article 'It depends whose data are being shared:...

Vulnerable Populations: Vulnerable People

Health Insurance and Vulnerable Populations

Our charge is to consider the causes of lack of insurance coverage for vulnerable populations. This is a daunting task for many reasons-not least because there are as many kinds of vulnerability as there are bad things that happen to human bodies or to human life. Although the term " vulnerable population " conjures images of a discrete and insular minority, every person's vulnerability to illn...

Vulnerability, vulnerable populations, and policy.

[ 411 ] Kennedy Institute of Ethics Journal Vol. 14, No. 4, 411–425 © 2004 by the National Reference Center for Bioethics Literature Produced at the National Reference Center for Bioethics Literature, Kennedy Institute of Ethics, Georgetown University, Box 571212, Washington, DC 20057-1212. The Center operates on a contract with the National Library of Medicine, National Institutes of Health. A...

Vulnerable populations and health insurance.

This study provided a national profile of health insurance of certain vulnerable populations including children, racial/ethnic minorities, low-income families, non-metropolitan statistical area (MSA) residents, and those with poor health status. The study shows an increase in the proportion of uninsured nonelderly population. While public insurance helped reduce the employment- and health-relat...